

Benny foley
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Benny foley
MemberJune 30, 2023 at 3:13 pm in reply to: How does wearing an eye patch for Myasthenia gravis make you feel?I was diagnosed two months ago with double vision, and my acetylcholinesterase antibody positive.
I am seeing a neurologist, and was diagnosed Mestinon, Cellcept and prednisone 20 mg ย I have worn a patch for the last four months and of course it is very frustrating to not have your peripheral vision in one eye ย however, I have 2020 vision in both eyes ย the double vision is beginning to clear somewhat, and I am able to go for periods without the patch ย of course I must be careful, and will soon return to driving when I feel I am ready. It was quite devastating at the beginning however, I have grown to accept ย it. I pray the double vision will completely subside with my medicationโs the prednisone, 20 mg takes me on an emotional roller coaster in two months. I will be tapering the prednisone. This is certainly a new normal that I have to get a custom to. We donโt like it, but we must accept it. -
Benny foley
MemberJuly 2, 2023 at 1:29 pm in reply to: How does wearing an eye patch for Myasthenia gravis make you feel?My neurologist and ophthalmologist told me that prism lenses would not help. Would you kindly share with me your experience with the prism lenses?
Best regards
Benjamin Foley