@annemarie
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Annemarie P's profile was updated 1 week, 5 days ago
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Annemarie P replied to the topic What happened to efgartigimod/Vyvgart for seronegative MG? in the forum Myasthenia Gravis Research, Scientific News, & Clinical Trials 1 week, 5 days ago
I met with my Neuro beginning of June, she is hoping as am that the drug gets approved soon for us seronegative people. So far, one year of Cellcept, 90mg Pred, weaning to 20mg now, gone through Ivig, Plasmapherisis, Mestinon is hard to tolerate and doesn’t really work for me any more. My drs are going to have a big POW WOW to discuss next cour…[Read more]
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I know so many members share your same frustrations. I believe a more significant percentage of those with MG are seronegative than people typically think. Research attention must be directed to aid these individuals and not just push everyone with this type to the side. It is a critical issue.
How have you been doing this week, Annemarie?…[Read more]
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Annemarie P replied to the topic Seronegative Diagnosis? Please read. in the forum About Our Forum/Welcome Lounge 1 week, 5 days ago
I am seronegative.
71, diagnosed 1 year ago, not much luck with therapy
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Annemarie P became a registered member 1 week, 6 days ago
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Hello, Annemarie! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself…[Read more]
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