• Amy posted an update 6 months, 2 weeks ago

    @peb24g
    Hi Peggy, I am also seronegative. I renember last summer when I finally got the diagnosis of MG by my response to Mestinon and an SFEMG test, the PA asked me if I knew what an MG crisis was. Of course I bobbed my head all I wanted to do was get out of there. I really don’t know exactly how a crisis starts or when to call my doctor. I had a couple of disturbing incidents this week that made me wonder if this could be the start of what happens during a MG crisis. I take Mestinon 4 times a day 6 am, 10, 2 and 6 pm. I woke up 2 days in a row just a little before my 6 am Mestinon dose and could not catch my breath. I was just sitting on the edge of my bed. I kept telling myself to calm down and to not panic. I took my 90 mg of Mestinon and in about 1 hour I was breathing better. I still have tightness around my ribcage with some minor pain. It happened the last two mornings. I do know that last night while sleeping I was coughing quite a bit. My allergies are terrible right now. After chasing a diagnosis and a treatment plan for 10 years and feeling like most of the doctors I saw thought I was nuts., I am hesitant to reach out to a doctor now unless I am confident I am experiencing an MG symptom.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or    

Forgot your details?

Create Account