Profile

I am seronegative, but have a positive SFEMG test and have been on Mestinon since 2018 and Cellcept since 11/2021. I have a complex medical history including metastatic breast cancer, diabetes, Hashimoto’s and Sjogren’s which has only muddled my MG diagnosis.  I have diplopia (prism glasses), weakness in my legs, arms and shoulders.  Recently I have started to experience more trouble breathing.  When I first started Mestinon I went from shuffling and barely able to lift my legs to actually being able to walk through the grocery store with a cart and complete my shopping.  The effects of Mestinon are no longer as pronounced as they were initially, but I can tell when my dose is late and my neurologist has added a 4th dose that I take early in the evening, and have started Cellcept.