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AGASimpson replied to the topic Funding for MG Research and Care in the forum Myasthenia Gravis Research, Scientific News, & Clinical Trials 3 months, 3 weeks ago
Another element that I truly believe needs to be addressed: according to our doctors at Stanford Children’s health, no research tracks kids with MG after they become adults.
Two years after his first crisis, my son is now off the prednisone and in remission. During our last visit, the doctor told us that a large percentage of kids go into…[Read more]
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AGASimpson replied to the topic Funding for MG Research and Care in the forum Myasthenia Gravis Research, Scientific News, & Clinical Trials 3 months, 3 weeks ago
I wish there had been more research on diet and MG. My son’s medication did start working until we took out dairy from his diet. Was it a correlation? We don’t think so. My teenager can feel the difference in his performance when he stops paying attention to his diet and exercise ( that is through for all of us, isn’t it), but his doctors are…[Read more]
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AGASimpson became a registered member 5 months ago
Hey! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Fantastic to hear that your son is…[Read more]