• Ari Maayan

    Member
    March 11, 2025 at 2:26 pm

    60 mg 4X plus 2X Azathioprine daily has worked well for many years. However, just recently, I seem to be slipping downhill. I am experiencing the worst that those of us can experience, and that is increasingly weakening muscular strength in my diaphragm. I can’t walk even a city block without needing to stop and sit down 3 times during the walk. I can’t climb a single flight of stairs. My neurologist has set the wheels in motion for me to have a breathing study. It’s not the end of the world, I just will have to start wearing oxygen. I’m 81 and I have gotten this far without it so I can’t complain.

  • Geoff Verschoor

    Member
    March 14, 2025 at 9:41 am

    I have been stable on five Mestinon per day for several years. I crept up from an initial three to four and then five to deal with specific symptoms: a lunchtime slump and then breathlessness in late afternoon. The extras worked for me. However double vision was not improved by the increases, but was partially ameliorated by the addition of immunosuppressants.

  • paul spychalski

    Member
    March 18, 2025 at 10:57 am

    60mg 3x a day

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