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Ocular MG – Hacks, tricks, tape, etc?
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Yes but did not get any relief until I had my cataracts removed. After the surgery FOR SEVERAL MONTHS then it has been appearing at times. I only wear good pair of sun glasses. Before the surgery to prepare eye drops were used, that had I believe was Prednisone. I did several things: by a eye patch useful when driving or reading. I rarely drive any more even though I rarely have problems with the double vision. While ridding in the car if DV starts I look out the window which will clear it out and keep clear until look forward again and when I was having every day it would go back to DV. Good luck I am in my 70’s. There is a lot to learn about MG. I am Sorry I did have corrective lens before eye Surgery. Since my eyes were 20-20 or20-30.If you like to read a lot then it shows when my eyes are tired. You of course may have a different experience.
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Upneeq works for me and it is remarkable. Helps the eyelid droop and also the double vision, since part of the double vision is caused by the eyelid droop interfering with eye movement. It is prescription, but it is the same medication as OTC Afrin, and can be prescribed by an Optometrist as well.
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I too have ocular myasthenia and take mestinon 60 four times a day. There are times that i still have to use tape on my eyelids so I can drive.
I use clear IV or surgical tape (ordered through Amazon) for my eyelids when necessary. It comes off fairly easily at bedtime, usually by using warm water on it to teal it off.
I was recently treated with prednisone for a different medical issue and interestingly, my eyelids reverted to normal. We’ll see how long that lasts.
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I’m a newbie to this club. Being a middle child, I always wanted to be “special”, but this is ridiculous. I didn’t mean I wanted a rare neurological disease! I was just diagnosed end or August/early September. I don’t even see a neurologist until October 24th and my ophthalmologist said he didn’t need to see me again until January. I really feel lost. I’ve had a droopy left eye lid since last November and on/off double vision since February 2022. No one caught it. Four optometrists and one ophthalmologist all missed it. It was on and off, but mostly off until July 2024. It’s been nonstop since. I did have an optometrist that recognized that I needed a prism lens for my right eye. Which helps with double vision, but I can’t read anything with both eyes open. I drive with an eye patch; I have severe vertigo if I don’t wear an eye patch.
I’m just so thankful that I found this site. Everything I’ve read is so new and foreign to me and I’m still trying to take it all in. I really don’t have a clue what’s in store for me and in all honestly, I’m a bit scared.
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