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MG and Ataxia
Posted by paul spychalski on January 17, 2025 at 9:43 amIs it possible to have both and how could that be tested?
paul spychalski replied 3 months, 1 week ago 5 Members · 7 Replies -
7 Replies
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I have gMG and ataxia. While ataxia isn’t widely known as a symptom of MG it can be.
I work with a neurological physical therapist on balance & safe mobility & I highly recommend doing it.
I also use a Balancewear weighted vest which helps a lot to keep me stable on my feet.
For me none of the treatments has made an improvement- I’m focusing on doing what I can to adapt & stay safe.
Best of luck to you.
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I take Pyridostigmine and it helps! Some manufacture’s make it better than others. I a Vet and go to the VA and the brand changes from time to time and so does the helfulness. Double Vision is the worst. Good luck with your treatment.
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When i came out of a 7 week stay in the hospital and rehabilitation i had an static gait and was discharged from the rehab as failure to progress and told I would be wheelchair bound for life, but instead of being diagnosed as ataxia,I was diagnosed as FND. The interesting thing was I recieved retuxan when I was discharged.and 10 weeks later I was walking again and only had balance issues but no ataxic gait. I returned after the retuxan wore off but once again went away with retuxan.
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I have both MG and Gait Ataxia. Around the house I use a rollator but away from home I have to rely on an electric wheelchair. Ataxia was diagnosed 1st and later Seronegative Myasthenia Gravis.
Frank
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Deleted User
Deleted UserJanuary 22, 2025 at 4:28 pmYes, it is possible to have both MG (Myasthenia Gravis) and Ataxia, though it’s rare. To test for it, doctors would typically do a combination of blood tests, imaging (like MRI), and possibly a nerve conduction study to check how the nervous system is functioning.
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