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  • monique-shea

    Member
    January 17, 2024 at 3:40 pm

    Hi Paul,

    I live in NH and get my care at MGH neuro muscular clinic

    I seeDrAmanda Guidon who is wonderful

    Best to get care at medical centers

    Good luck!

  • paul-p-ellsworth

    Member
    January 17, 2024 at 3:51 pm

    I truly appreciate the responses, but my last reply to this thread (a few days ago) is about 10 to 12 posts up and explains that I found a good Doctor and got a diagnosis and am on a treatment path. Thank you,

    Paul

  • wayne-eisen

    Member
    January 24, 2024 at 4:09 pm

    I just want to say that anyone taking prednisone should tk collagen supplements. I have been taking a lot of prednisone for long. I had a bone density scan a couple years ago and another a couple months ago. Prednisone weakens bone density. So does getting older. My bone density has improved because of the collagen, glue of life. In fact, everyone should have plenty of collagen, which I put in my super charged smoothies.

    Best wishes folks, Wayne

    • paul-p-ellsworth

      Member
      January 28, 2024 at 7:07 am

      Thank you for the tip, Wayne! My Rheumatologist had me on prednisone for over a year about five years ago, but it was only around 5mg daily. I will add some collagen to my diet. I believe I have powdered bone broth that I intended to use in recipes……

      Paul

  • wayne-eisen

    Member
    January 31, 2024 at 8:42 pm

    You’re very welcome, Paul. Best wishes, Wayne

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