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Have you ever been dismissed by a doctor or had your symptoms ignored?
Many people with MG share a common experience: it took far too long to be diagnosed. For some, doctors brushed off their concerns. Others were told their symptoms were stress-related, anxiety, or “just in their head.”
This kind of medical gaslighting can be incredibly frustrating, and even dangerous.
🗣️ Have you ever experienced medical gaslighting?
⏳ Did it delay your MG diagnosis or treatment?
💡 What would you tell someone who’s currently struggling to get answers?
If you feel comfortable, share your story below. You never know who might read it and feel a little less alone.
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3 Replies
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If you’re not getting the cooperation from the Drs,, ask for a nerve conductivity test to diagnose muscle fatigue.
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Doctors gaslight the best of us.
I say this for a reason. In the 70’s and 80’s I was a Corpsman in the Navy for 12 years.
First I learned that doctors are human just like us. However, they have a lot more training in medicine than most of us. But that doesn’t mean they know everything.
What does this means for us, that we have to be our own best advocate or bring someone with us that can advocate on our behave. Also, I didn’t accept their answer that there wasn’t anything wrong with me.
I keep looking for answers because I was having problems and I knew something was wrong. I talked to many doctors, and did a lot of research. I wouldn’t recommend that unless you have a little medical knowledge.
Medical gaslighting is real but are they doing it evil intent or because maybe they have any answers for us.
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When my double vision started, eye doctor and neurologist were very sure that this is only eye muscle weakness. Neurologist commented that it would be visible if they think of something. But nobody could explain what suddenly I started to see double. They made me use prismatic glasses for 2 years before flare and followed up by MG diagnose. I couldn’t drive properly.
When I was diagnosed for the first time, first neurologist had no idea about the disease and gave me high dose prednisolon. When I had slurry speech, he said it might be psychological. No, it wasn’t. He just didn’t know.
Finally I got a good doctor and on correct treatment.
It was hard time and I want to forget.
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