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Anxiety and myasthenia gravis
Living with MG can make everyday stress feel intensified, and anxiety sometimes shows up in unexpected ways. It might be the fear of symptoms appearing at the wrong time, or the mental load of always having to think ahead. Many people notice that the emotional side of MG is just as impactful as the physical side, and it deserves to be talked about.
- What parts of MG tend to trigger the most anxiety for you?
- Have you found anything that helps calm “what if” thoughts?
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4 Replies
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not knowing what area of my body will be affected next. It is very anxiety producing when going out. I have to be careful where I walk, sit, etc.
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That uncertainty you’re describing is something many people with MG struggle with. Not knowing which part of your body might weaken, if you’ll get sick, or if you’ll make it through the day, can add up to create a lot of tension in the background of daily life, especially when you’re out in public and trying to move safely. It takes a lot of awareness to navigate that kind of unpredictability. Sending good vibes your way -Jodi, Patient Advocate
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Well I had a major crisis in 2022 which I had many rounds of intubations 6 time to be exact, and now when ever I feel like my breathing isn’t quite right I get anxious and have to take meds for it. Also came out of the hospital after 4 months with PTSD and in a constant state of concern if my I even feel like my breathing is getting shallow.
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That sounds incredibly difficult to deal with, especially after going through so many intubations. It’s understandable that changes in your breathing would cause anxiety after such experiences. Our bodies definitely remember past medical emergencies that stay with us long after they’re over, even when we try to forget. You are not facing this reaction alone, we’re here for you as you navigate this journey. -Jodi, Patient Advocate
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