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I have been a myasthenic for sixty years. I trained as a naturopath/herbalist to help myself and others. Having been very very ill at 18 years and improved by thymectomy at 20, I have looked after myself well and even became a massage therapist at 50 years of age. I don’t drive because of potential double vision, so walk everywhere which is perfectly possible most days, and keeps me fairly fit. I suffer mostly when I have a cold or ‘flu.
I personally find I am sensitive to wheat, and always feel worse when I use it; oats and many other glutens are OK. I minimise dairy except for yoghurt which is a wonderful help when the Mestinon cramps overtake me. Even a cup of milk coffee can stop the cramps in their tracks if there is no yoghurt handy. Cramps are always worse if tablets are taken on an empty stomach.
I eat lots of fruit and vegetables, some brown rice and chicken and fish. I try to minimise sugar, and drink a small glass of wine several times a week. Occasional red meat.
Supplements, I think are needed. The tablets increase the peristalsis so the food passes through our systems a bit too quickly…..I take fish oil, vitamin D, Co Q10 (for artery and vein support and energy…I am 78), vitamin C and B intermittently if I am tired or not functioning too well. I also use astragalus, a herb which I find balances me(except if ill with infection).
I see a chiropractor every month as my muscles don’t always hold the bones in place and I have a good wholistic GP who always listens and we work together on any problems.
I feel very blessed.