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  • MG fatigue – it’s full body depletion

    Posted by Community Member on May 6, 2026 at 7:25 am

    MG fatigue and low energy are one of the hardest parts for me; even during periods when other symptoms are controlled, the feeling of being drained lingers…

    What do you do on the days it really hits – what actually helps?

    Community Member replied 5 days, 16 hours ago 3 Members · 2 Replies
  • 2 Replies
  • Community Member

    Member
    May 6, 2026 at 10:37 am

    The only thing that helps for me is taking several rests/naps throughout the day. I’m long ago retired (78 yrs old) so finding the time for that is not a problem. Sometimes I set my phone timer for 15 or 20 minutes and just lay down for that time, and other times I take longer rests with real sleep. Every day I take a 40-minute nap after my mid-day meal and it really helps.

    • Community Member

      Member
      May 8, 2026 at 2:42 pm

      I also am 78 and do exactly the same thing! Yesterday my eyes were really burning so I layed down and closed them for 20 minutes and the burning went away! Sometimes, my entire body feels like it is throbbing and a 45 minute rest changes everything!

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