-
MG fatigue – it’s full body depletion
MG fatigue and low energy are one of the hardest parts for me; even during periods when other symptoms are controlled, the feeling of being drained lingers…
What do you do on the days it really hits – what actually helps?
-
6 Replies
-
The only thing that helps for me is taking several rests/naps throughout the day. I’m long ago retired (78 yrs old) so finding the time for that is not a problem. Sometimes I set my phone timer for 15 or 20 minutes and just lay down for that time, and other times I take longer rests with real sleep. Every day I take a 40-minute nap after my mid-day meal and it really helps.
-
I also am 78 and do exactly the same thing! Yesterday my eyes were really burning so I layed down and closed them for 20 minutes and the burning went away! Sometimes, my entire body feels like it is throbbing and a 45 minute rest changes everything!
-
-
I definitely need help with this one!! I can almost tell when a bad day is coming – my brain gets really foggy. Does anyone else have brain fog? How can that be handled?
-
Hi all, my only help for my brain fog is i write…in a journal & poetry & i recently wrote a book for 3-5yr olds. For me that helps my specific issue & that is that I have alot of trouble recalling not only names, all names even names of things.
And nap tm…mandatory!
Im a 67 yr old retired nurse & i “power down” usually somewhere btw 4-5p…its lk the sand man sprinkles sleep dust in my eyes & im out…
-
I’m also 78 and totally agree about the necessity for naps. I’m on three week infusions of Soliris. I’ve been on that medication for over four years, however, in January of this year I noticed an increase in fatigue (and need for naps) and onset of something I can only describe as brain fog. When I wake in the morning it feels as if every cell in my body aches and I’ve not experienced that, at least not to this extent, before. This disease is very tricky…a real “snowflake” disease that I have found can confuse other diagnoses. It’s very important that your doctor is knowledgeable about MG. I’m currently researching involvement of the vagus nerve in MG and the relationship of my personality trait of hyper vigilance as the contributing factor.
-
I just turned 82 and have been dealing with MG for three years. When fatigue hits, I have no choice but to rest and do as little as possible. I just had an MG flair. It is the first one in three years and it put me down for two weeks. I get the brain fog and it drives me crazy. Once in a while I feel like I used to and my thinking is clear. I cherish those days. I am going back on IVIG infusions next week. I hope to see some improvement.
Log in to reply.