• GAMUNEX Infusions

    Posted by jeri on December 2, 2024 at 8:48 pm

    My Neurologist has ordered Gamunex infusions. Does anyone in this Forum have any experience with this drug?

    shawna-barnes replied 1 month ago 4 Members · 3 Replies
  • 3 Replies
  • dad2fly

    Member
    December 3, 2024 at 3:41 pm

    I have been on it for a while and haven’t had any major problems, you just have to start off slow on the infusion rate because you might get a nasty headache if you get to much to fast but I believe that’s true of all brands and It definitely worked for me.

  • Robert B.

    Member
    December 3, 2024 at 3:47 pm

    I’ve been on IVIG drugs since I was diagnosed 10 years ago. The first one they put me on was Gamunex-C. It helped my gMG symptoms dramatically, but I broke out with a rash from using it. After switching to a different brand I didn’t have any more problems with the rash. This doesn’t mean that you will have the same allergic reaction. I hope it works as well for your MG symptoms as it did for mine.

  • shawna-barnes

    Member
    December 30, 2024 at 1:33 pm

    Hi Jeri.

    I have had Gamunex and Privigen for my infusions. I have been able to tolerate the highest drip rate for both with no side effects. I do have a power port and that has made all the difference for my infusions in general.

    With the Gamunex, I would almost always “crash” and sleep for 12-15 hours the night after I got the infusion. I’ve not noticed the same exhaustion post Privigen infusion. Other than that, that is the only difference I’ve noticed.

    I’ve written about my infusion experiences. I hope this one helps.

    https://myastheniagravisnews.com/columns/ivig-therapy-how-having-port-improved-mg-treatments/

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