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  • Your experience with Retuximab

    Posted by Tim on August 2, 2024 at 5:20 pm

    Has anyone had much success with Retuximab infusions? Curious about any benefit, how long after infusion did you experience any improvement, frequency of infusions, did it replace some other med?

    I’ve had Vyvgart infusions for 2 1/2 years (one a week for 4 weeks, 4 weeks off, repeat) in addition to Pyridostigmine (SR180mg 3x daily) and Azathioprine (stopped before the Retuximab infusion). When the Vyvgart stopped helping with symptoms is when my Neurologist decided to try something else, Retuximab. It has been >8 weeks since the Retuximab infusion, still waiting for improvement.

    What has been your experience?

    Tim replied 5 months, 2 weeks ago 1 Member · 0 Replies
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