• FrancisW

    Member
    March 5, 2022 at 12:31 am

    I am male 62 years old diagnosed 1 year ago. I could not keep my right eye open or keep my head upright. Sometimes having labored breathing. One alcohol wine drink would make it impossible to talk and difficult to swallow. Found a good Dr. I was put on Imuran and Mestinon. 4 times per day each. I have non-thymus MG. Nevertheless the recommendation was to have surgery to remove my thymus. I did not. In the Orphanet Journal of Rare Diseases (2021) there is credible new research (I believe) that states that late onset non-thymus MG (NTMG) thymectomy yields no benefit versus conservative treatments. My Dr. and the surgeon was not aware of this research. I can send you the article. There are significant videos on use of Vitamin D to treat autoimmune diseases. So I started taking 15,000 IU per day. And I monitor my blood with tests. I brought my Vitamin D up to 150 ng. My Dr. suggested staying at 10,000 IU per day. There is also research that suggests the stomach plays a part in MG and the inflammatory cytokines may start in an stomach imbalance . So I added Ginger Root and Turmeric supplements. With Turmeric it was the Curcuminoids I was after. Turmeric 900 MG 4 times per day with 95% Curcuminoids. Turmeric I take to lower body inflammation. Ginger Root 550 MG 4 times daily. Ginger Root I take to improve my dygestion.

    Presently, I only take 3 times daily Imuran (50 MG each) and 2 times daily Mestinon (60 MG each). I just had dinner with my wife. Had a glass of wine and a cocktail. I was able to eat and talk thru the whole meal. I expect to reduce the Mestinon to 1 times daily soon, or as my Dr. says only as needed.

    There is hope ! If I can help let me know.