March 19, 2020March 19, 2020
Dual Immunoglobulin, Aimovig Therapies Safe for MG, Migraines, Report Says
News
Aimovig (erenumab) and the investigational immune therapy subcutaneous immunoglobulin (SCIg) can safely be used simultaneously to treat migraines and ... Read more
March 18, 2020March 17, 2020
Fighting to Live During a Nationwide COVID-19 Lockdown
Columns, Positively MG - a Column by Megan Hunter
On March 15, South Africa waited with bated breath for its president to address new measures to fight COVID-19. ... Read more
March 17, 2020March 17, 2020
Increasing Expenses for MG Patients In China Suggest Inadequacy of Current Medical Insurance Policies, Study Says
News
Out-of-pocket expenses for people in China who have myasthenia gravis increased from 2013 to 2015, suggesting that current policies for ... Read more
March 12, 2020March 12, 2020
Levels of Certain B- and T-cells Linked to Ocular MG Turning Generalized
News
Low blood levels of regulatory immune cells that prevent autoimmune responses, and high levels of antibody-producing memory B-cells may ... Read more
March 11, 2020March 10, 2020
Let’s Work Together to Stay Safe During the Coronavirus Crisis
Columns, Positively MG - a Column by Megan Hunter
Last week, we had the first COVID-19 diagnosis in South Africa, and everyone immediately dashed to their panic stations. ... Read more
March 10, 2020March 10, 2020
Osteopontin Protein May Worsen MG by Affecting Immune Cells, Study Finds
News
The protein osteopontin, thought to be involved in autoimmunity and inflammation, appears to aggravate myasthenia gravis (MG) progression by ... Read more
March 5, 2020March 5, 2020
Complete MG Remission Seen as More Likely in Robot-assisted Thymectomy
News
Surgery to remove the thymus gland, a procedure often recommended to people with myasthenia gravis whether or not tumors exist, ... Read more
March 4, 2020March 5, 2020
Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare
News
In recognition of Rare Disease Day Feb. 29, BioNews Services launched a social media campaign last month asking patients ... Read more
March 4, 2020March 2, 2020
Expressing Gratitude: Being ‘Rare’ Has Positive Attributes, Too
Columns, Positively MG - a Column by Megan Hunter
Being diagnosed with a rare disease is heart-wrenching and difficult, and something one usually never expects. It changes the ... Read more
March 3, 2020March 3, 2020
HBM9161 Shows Potential to Treat Autoimmune Diseases, Early Data Suggest
News
Harbour BioMed‘s HBM9161 was found to be safe and effective at reducing the levels of autoimmune disease-associated antibodies in ... Read more
March 2, 2020March 2, 2020
Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29
News
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will ... Read more
February 27, 2020February 27, 2020
Advice on Starting Nonprofit Groups for Rare and Other Diseases Focus of NORD Webinar
News
Starting a 501(c)(3) tax-exempt nonprofit isn’t easy, but the National Organization for Rare Disorders gave a few tips for ... Read more

March 19, 2020March 19, 2020

Dual Immunoglobulin, Aimovig Therapies Safe for MG, Migraines, Report Says

News

Aimovig (erenumab) and the investigational immune therapy subcutaneous immunoglobulin (SCIg) can safely be used simultaneously to treat migraines and myasthenia gravis, according to a recent case report. Both treatments were ... Read more

March 18, 2020March 17, 2020

Fighting to Live During a Nationwide COVID-19 Lockdown

Columns, Positively MG - a Column by Megan Hunter

On March 15, South Africa waited with bated breath for its president to address new measures to fight COVID-19. Countless messages of anticipation cycled between family and friends in ... Read more

March 17, 2020March 17, 2020

Increasing Expenses for MG Patients In China Suggest Inadequacy of Current Medical Insurance Policies, Study Says

News

Out-of-pocket expenses for people in China who have myasthenia gravis increased from 2013 to 2015, suggesting that current policies for medical insurance in China are inadequate for those living with ... Read more

March 12, 2020March 12, 2020

Levels of Certain B- and T-cells Linked to Ocular MG Turning Generalized

News

Low blood levels of regulatory immune cells that prevent autoimmune responses, and high levels of antibody-producing memory B-cells may cause ocular myasthenia gravis (MG) to progress to generalized MG, an early study ... Read more

March 11, 2020March 10, 2020

Let’s Work Together to Stay Safe During the Coronavirus Crisis

Columns, Positively MG - a Column by Megan Hunter

Last week, we had the first COVID-19 diagnosis in South Africa, and everyone immediately dashed to their panic stations. People flocked to pharmacies to buy all of the masks, ... Read more

March 10, 2020March 10, 2020

Osteopontin Protein May Worsen MG by Affecting Immune Cells, Study Finds

News

The protein osteopontin, thought to be involved in autoimmunity and inflammation, appears to aggravate myasthenia gravis (MG) progression by promoting the production of self-reacting immune cells while lessening the ... Read more

March 5, 2020March 5, 2020

Complete MG Remission Seen as More Likely in Robot-assisted Thymectomy

News

Surgery to remove the thymus gland, a procedure often recommended to people with myasthenia gravis whether or not tumors exist, is more likely to result in complete disease remission when ... Read more

March 4, 2020March 5, 2020

Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare

News

In recognition of Rare Disease Day Feb. 29, BioNews Services launched a social media campaign last month asking patients to describe what makes them rare. Running Feb. 7–29, the ... Read more

March 4, 2020March 2, 2020

Expressing Gratitude: Being ‘Rare’ Has Positive Attributes, Too

Columns, Positively MG - a Column by Megan Hunter

Being diagnosed with a rare disease is heart-wrenching and difficult, and something one usually never expects. It changes the course of a person’s life, leading them down a path ... Read more

March 3, 2020March 3, 2020

HBM9161 Shows Potential to Treat Autoimmune Diseases, Early Data Suggest

News

Harbour BioMed‘s HBM9161 was found to be safe and effective at reducing the levels of autoimmune disease-associated antibodies in many disorders, including myasthenia gravis, a Phase 1 trial shows. ... Read more