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I live in Manila, Philippines, while my twin brother, Aaron, still calls our hometown of New York City home. Depending on daylight saving time, there is about a 12-hour time difference between us. When it’s…
News & Perspectives
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A new study shows how Cour Pharmaceuticals‘ nanoparticle platform is able to modulate immune system activity, lending support for the company’s experimental treatments. Cour’s CNP-106, an experimental treatment for generalized myasthenia gravis, is…
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I try not to be obsessed with assessing my symptoms of myasthenia gravis every morning. I try to let things be and simply accept whatever my body decides that day. But it always ends…
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An elevated triglyceride-glucose (TyG) index, a blood marker of insulin resistance, may be a useful biomarker to identify people at risk of developing myasthenia gravis (MG) associated with a thymoma, or thymus tumor, a…
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Telitacicept safely and effectively reduces disease severity in people with generalized myasthenia gravis (MG) associated with anti-AChR antibodies, including when the disease is hard to treat or associated with a thymus tumor, a…
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Last week, my husband rescued me from feeling like the Scarecrow in “The Wizard of Oz” — as if I didn’t have a brain, weighed down by stubborn brain fog that lingered far too long.
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I was shocked when I learned recently that my twin brother, Aaron, had suddenly become lactose intolerant at age 50. He was diagnosed after becoming violently ill from adding cheese to a beef empanada. It…
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People have always searched for explanations when confronted with suffering that feels arbitrary or unjust. Before modern medicine, illness was blamed on gods, fate, moral failure, or contagion of the soul. In “The Plague,”…
Community Videos
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
Mark Harrington talks about the frustration of MG fatigue and the freedom that came when he learned to slow down. With support from friends and mindful routines, he discovered how rest could become a form…
Joe Enders reflects on his daughter Jodi’s MG diagnosis, her independence, and the challenges of balancing support with giving space. He discusses the role of family and support groups in navigating remission, anxiety, and the…
Chloe Wigg shares her experience living with myasthenia gravis (MG), from facing isolation and setbacks in her art to creating the exhibition OMG! She reflects on resilience, the power of community, and how storytelling through…
Charlotte, a cardiology nurse living with myasthenia gravis (MG), shares how her diagnosis shaped her career and perspective on care. She reflects on the slow onset of symptoms, the challenges of nursing school, and the…
Yvette Bernal shares her journey with myasthenia gravis (MG), from the fear of early symptoms and ICU stays to navigating the realities of motherhood while managing a chronic illness. She reflects on honesty, connection, and…
Kristina Kelly shares her journey with seronegative myasthenia gravis, from years of medical gaslighting to becoming a certified patient advocate. She reflects on self-trust, persistence, and the strength it takes to speak up and be…
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Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
Treatment
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.