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Depending on your support system with MG

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Breath and rest

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Tina Hancock, who lives in Georgia, has managed myasthenia gravis for decades. She shares why open communication and accepting help early can ease challenges, build trust, and create a stronger support system as symptoms change.

Transcript

It’s vital to communicate with them, and you’ve got to set up lines of communication in advance.

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You can’t wait till you have a crisis. And when somebody offers help and says, call me if you need me, you need to call them.

And when somebody offers help in the moment, you need to be honest and take it. Because if you don’t and they go off and do something else, they may not be available.

It would have been easier for them if you let them help you when they offered. So don’t wait. Don’t let it get worse. Just take the help.

They’ll come to trust you that when you ask for help, they know you need it and you’re being honest. You’re not. Wait until things get really bad. I’ve learned that from experience.

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Navigating myasthenia gravis with mindfulness and hope
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