Accepting and practically adjusting to MG’s uncertainty

And the muscle weakness, if you have to go out that day, rest the day before because it’s going to kick in. It’s gonna kick in at the worst time. If you’re going to the store, take the shopping cart so you don’t have to carry nothing.

I have a bag, but I have to hold it here on my wrist because my hand would keep opening up. I couldn’t lock my hand. Every time I hold something here, it kept opening up. So I had to walk around with my hand hanging, a bag hanging around my wrist, and I’m like, I don’t like this. And I’m like, look, I got a pocketbook.

I’m not mocking anyone that carries a bag like that — it just wasn’t for me. So if I got to go out, I’ll take a cart. Take a little cart with me, and I put everything in there.

“You know you just came to get this.” “I don’t want to get—” I tell people, “You only got a little bit.” “Yeah, I know. I thought I was gonna get a lot more.”

Always take the cart with you. Take your shopping cart — that way, you don’t have to carry nothing. And then when the muscle weakness happens in your leg, you can lean on the cart. It’s like a walker. And I’m not gonna be ashamed to admit it — I used a cart like it was a walker a lot of times.

Because I didn’t want to fall on the street, and I couldn’t carry nothing. But if I did get too weak, I go by where the bus stop is and I have a seat. I let three buses go by one time.

So I’m sitting out there resting because, you know, I wanted to go to the store. I don’t like feeling weak. I want to help out. But to do that, you have to rest. And I did too much the day before, and it fell on me. But I sat, I rested, and I did get home.

You have to accept the situation you’re in. There’s no quick fix. There’s no wonder drug. You have to accept it.