Pushing back at MG:
From getting informed to taking action

Segment 1: Finding credible MG information in a digital era

Vanetta and Bruce share how their search for reliable myasthenia gravis information changed over time, from scarce resources to trusted support networks. They also reflect on the role of doctors, social media, and AI tools in navigating MG research and care.

Watch Video

About the webinar

Myasthenia Gravis News hosted a live webinar on Oct. 24, 2025, to help patients and caregivers affected by myasthenia gravis (MG) build a care plan that powerfully resists the disease. Panelists included Bruce Guercio and Vanetta Fenton, who have MG, and neurologist James F. Howard, Jr, MD. Along with host Shawna Barnes, who has MG, they discussed a variety of topics including tips for responsibly researching the disease, lifestyle adjustments that improve symptom management, and how to partner with doctors rather than being only recipients of care. Check out the highlights from the webinar below.

Watch more

Segment 2: Practical lifestyle changes to prevent MG flares

Panelists share daily practices — from easing into mornings without alarms to pacing activity with rest — that help manage MG symptoms. Their experiences highlight how individualized routines and stress management improve quality of life.

Watch Video

Segment 3: Partnering with doctors to strengthen MG care

Panelists share how journaling, note-taking, and AI tools help track MG symptoms and prepare for meaningful conversations with doctors. They stress building partnerships with providers to move beyond symptom management toward true quality of life.

Watch Video

Segment 4: Q&A and wrap-up

James F. Howard, MD, explains timelines for MG therapies and when to pivot — using fast-acting “bridge” options so no one has to suffer while slower meds take effect. Panelists share how they judge when a drug isn’t working, tell MG fatigue from everyday tiredness, and watch for “green flags” to try new treatments while protecting quality of life.

Watch Video