John Palatucci
Forum Replies Created
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John Palatucci
MemberSeptember 29, 2022 at 2:26 am in reply to: Mestinon 60 mg verses Mestinon XR 180 mgHello everyone, in regards to mestinon er, i take 1 before bed time along with 3 mestinon 50 daily. And it does help me through the night. O was also getting the ER from canada costing much less than through my insurance. But now I get the ER for no cost at all through The Assistance Fund. If anyone is interested, let me know and i will give you the details
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John Palatucci
MemberSeptember 29, 2022 at 2:26 am in reply to: Mestinon 60 mg verses Mestinon XR 180 mgHello everyone, in regards to mestinon er, i take 1 before bed time along with 3 mestinon 50 daily. And it does help me through the night. O was also getting the ER from canada costing much less than through my insurance. But now I get the ER for no cost at all through The Assistance Fund. If anyone is interested, let me know and i will give you the details
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John Palatucci
MemberSeptember 26, 2022 at 12:21 pm in reply to: Imuran (Azathioprine) and Side EffectsH all, i was diagnosed in 2015 with gMG and was put on high doses of imuran50 40 daily, mestinon60 4 daily and prednisone 40mg daily for 4 weeks then tapered down.at present i am taking 3 imuran daily, 3 mestinon daily and 10mg Prednisone twice a week. Tho i do now have mild anemia i do have basil cell carcinoma on different areas of my body, am due for dermatology checkup..my current numerologist suggest i start Ultomiris but am concerned about the threat of severe meningitis so i am holding off on that because it is so new.my wife just started imuran for pericarditis but it to soon to tell how it will affect her. But as for me imuran has been helpful
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I have wondering and considering gummies for pain of arthritis and bad knees and back.i haven’t spoke to my neurologist about it yet because as of yesterday he wants me to start Ultomiris in a few weeks. Has anyone been on Ultomiris? The side effects of meningitis troubles me. I was diagnosed with gMG in 2015 and have been on mestinon, imuran Prednisone since. Thank you in advance
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John Palatucci
MemberMarch 25, 2022 at 11:29 pm in reply to: Does Temperature or Weather Trigger Your Symptoms?Definitely . Heat and over exertion is what brought M.G. on in my life when living in Alabama. Diagnosed in 2015 when my right eye closed and muscles went haywire.
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This sounds like it would help me as I also have bad back and knees and of course surgery has been recommended which i refuse to do any. Im 83 in a couple weeks and do not want to deal with gone bad surgeries of which i have heard of many. Therefore I will opt to try the CBD gel. Thank you for sharing.
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This is good to hear, i need the afternoon zing. Ive done werd and stuff 60 years ago probably quit in late 70s. Im 83 now and other than MG, arthritis and COPD im good to go a few more years anyway.
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I only got the j&j in March 2021 and have taken any others..not do I intend to..there is just so much up and down with the CDC and way to many scientists etc. I am doing good and get tested monthly always negative.I take 150 mg’s of azathioprine, 120 mg’s of pyrodostgmine, 5000 mcg of vitamin D3, along with zinc, calcium with magnesium, 10 mgs of Prednisone every other day fish oil, vit c, b12.
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Decrease in energy and onsets of sudden muscle weakness
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3000 iu D, calcium w/ magnesium, zinc, c,b12, imuran 3 daily and mestinon 2 daily, 10mg Prednisone every other day. Was diagnosed in 2015, blood work every 3 months. So far under control for the most part.