NORD: FINANCIAL SUPPORT FOR MYASTHENIA PATIENTS
For those of you who have not yet heard, the National Organization for Rare Disorders offers really meaningful financial assistance for people with rare disorders, which includes those with MG. They offer reimbursement for medical insurance premiums, prescription insurance co-pays, Medicare and Medigap premiums. treatment-related travel expenses and other benefits. The annual cap is $20,000 per grantee.
I have been receiving this support for several months now, and if you haven’t already, I urge you to contact them. There are no strings attached, the money is considered a tax-free gift, and the payments have been made within days of my submission of receipts.
Their phone number is (860) 498-4307; their email contact is at [email protected]. You will have to agree to a HIPAA release, then they will fax your doctor for confirmation of your diagnosis, That’s it.
This can be a real blessing for many people. I know it sounds too good to be true, but it is absolutely real.
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