• Newly Diagnosed

  LRP4: compare symptoms?

  Posted by Community Member on October 14, 2026 at 2:23 pm

  Still in a rollercoaster, but I got positive for LRP4 in September, and I’m building up a low dosage of Mestinon (start tomorrow with 30 mg: had 10 and 20 previous to check interaction with my heart condition). I can’t seem to find other LRP4 positive patients in the Netherlands (so far) so I hope I can find some on this platform to compare symptoms etc.

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