Myasthenia Gravis News Community Forums Newly Diagnosed How did your family and friends react to your diagnosis?

  • How did your family and friends react to your diagnosis?

    Posted by MG Community Member on November 19, 2024 at 9:00 am

    Are your family and friends as overwhelmed as you are/were when you got diagnosed with MG?

     

    How are you helping them to understand what MG is and how it affects you?

    MG Community Member replied 2 days, 15 hours ago 2 Members · 1 Reply
  • 1 Reply
  • MG Community Member

    Member
    April 17, 2026 at 5:28 pm

    Shocked and didn’t understand. For me, it was like being struck by lightning. One day I was fine, the next I wasn’t. Explaining the disease to them was easy. Them discovering that you can’t really “see” my symptoms has taken more time and patience. I appear to be fine on the outside. As soon as I speak though, it’s a different story.

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