• Anyone here who experienced a Hernia Surgery subsequent to Thymectomy?

    Posted by Junker on July 20, 2025 at 1:45 pm

    I had a thymectomy almost 2 years ago. In the course of these two years I had so many medical problems, unclear symptoms and hospital stays that no one really cared about my thymectomy wound. It was inflamed for some while but no measures have been taken.

    After losing lots of pounds and doing more intensive physio exercises it now turned out that the bulge on my chest results from a scar fracture. I will therefore undergo surgery in the upcoming week.

    The surgery itself should not be such a big deal, I am running, however, the typical risks of a massive flare up and risks affiliated with general anesthesia.

    So please feel free to wish me luck and let me know if you experienced similar problems.

    Leigh replied 21 hours ago 2 Members · 3 Replies
  • 3 Replies
  • Leigh

    Member
    July 20, 2025 at 2:54 pm

    Hello,

    I wish you the best of luck in your upcoming surgery. I understand the fear of surgery. I had a thymectomy 13months ago and had a mg flare. Put on a ventilator and spent a week in intensive care. My progress was completely reversed. I continued to have an aggravated incision with moderate nerve pain that I have never had before. No one believed me and I was miserable. I found an over the counter med, nervive, that allowed me to get through. But to this day I still have pain to the incision and surrounding chest area. Nerve pain to the touch on my skin. Doctors just laugh like I’m crazy. I wish I would have never had that surgery. Fast forward 5months after thymectomy & I needed surgery for cancer. I was terrified. Not from the cancer but the real fear of pain and MG crisis. I did extremely well with the second surgery. No extended pain and no MG aggravation. I feel like I can feel calmer about another surgery if it ever arises. My second incision is still sensitive in nature and slightly irritated. Could be from slow healing from immunosuppressants. Also on the side of the thoracotomy for thymectomy they have found fat necrosis on mammogram/ultrasound due to the surgery. I don’t know if that is a contributing factor. Good luck to you. Prayers for a speedy recovery!

    • Junker

      Member
      July 21, 2025 at 2:30 am

      Thank you very much for your good wishes and your useful information. I made a quick decision on the surgery. The respective fracture was diagnosed just a week ago. It annoys me, that my path of recovery is put on risk, but I have a good feeling. May be an advantage to be in a much better physical condition than 2 years ago, when I had my thymectomy.

      Thanks again and all the best for you!

      • Leigh

        Member
        July 22, 2025 at 2:21 pm

        You are exactly right. The better physical health the better the outcome! When I had my thymectomy I wasn’t in the best place physically. My doctor delayed the surgery a week at the last minute after my husband had already taken off work. We took advantage of the time and went on a mini trip. I mainly rested but ended up doing a lot of walking toward the end of the trip. I greatly believe how tired my body was contributed to the mini crisis and set back. You’re going to do great! It’s hard not to be traumatized by prior surgeries or medical situations.

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