Myasthenia Gravis News Community › Forums › Healthcare and Treatments › Myasthenia Gravis Diagnosis Timeline › Reply To: Myasthenia Gravis Diagnosis Timeline
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MG Community Member
MemberNovember 10, 2021 at 4:33 pmFirst symptoms (difficulty bringing food to the back of my mouth) in Nov 18. This persisted during December and I also started to slur speech (not great when you’re the narrator of a work panto – afterwards I couldn’t speak at all). Got fobbed off initially by my GP on first visit. Went back in January and got a referral to a maxo-fallacial specialist as the GP thought it was mechanical. That consulation and scan found nothing, so that specialist referred me to a neurologist who had an MG patient. When he described MG I was pretty certain that’s what it was and blood test and electrical conduction study in Mar 2019 confirmed things. Given that I was a late onset female, I thought that was pretty speedy. Chest CT revealed a whopper thymoma so surgery in Apr 19, revealed cancer, radiotherapy that summer and then a crisis with a month long hospital stay in September followed by 3 plasma exchanges and a second surgery and 18 months of steroids, I’m now “down” to just mycophenolate and a bit of pyridostigmine.