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Symptoms no one believed: is this how MG started for you?
Myasthenia gravis can start subtly, maybe just presenting as drooping eyelids, muscle weakness, double vision, or extreme fatigue. However, sometimes, people around us and doctors don’t take those initial symptoms seriously, especially when they’re invisible or don’t have a straightforward explanation.
- What was your very first MG symptom?
- Did anyone (including doctors) dismiss it at first?
- How long did it take for someone to finally listen?
Share your experience in the comments!
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2 Replies
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My first symptom as a kid was repeated falling and fatigue, so of course it was taken seriously. Later as a teen, it was vision, and as an adult, it was dropping things, then speaking, swallowing and breathing. I’ve been taken seriously all along until I got my last MG expert, who repeatedly tells me at my once a year only appointment that we’re lucky I’m not as bad as her other patients. As if choking on your own saliva and not being able to breathe at any moment of the day is not bad enough!
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My first symptoms included dizziness, weakness, fatigue, droopy eyelid, heaviness in my arms & legs. Then shortness of breath, difficulty chewing/swallowing and slurred speech. My eye doctor referred me to a neurologist and within weeks I was diagnosed.
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