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It sounds like you have a generalist Neurologist, not a specialist. You didn’t say where you are located but my suggestion is to find a Neurologist who specializes in MG and similar conditions. All Neurologists know about MG, but very few are a specialist in it. As an example of a specialist to seek out is Dr. Johnathan Katz in San Francisco.
Here is what Sutter health shows as his profile.
Jonathan Katz, MD
1100 Van Ness Avenue Floor 6, San Francisco, CA 94109
415 600 9604
Dr. Katz studies amyotrophic lateral sclerosis (ALS), myasthenia gravis, neuromuscular diseases, pain management, peripheral neuropathy, poliomyelitis, radiculopathies, and spinal muscular atrophy. He leads clinical trials of pharmacotherapies to slow the progression of ALS; device trials; a study of the NeuRX Diaphragm Pacing System to support patients with diaphragm weakness; and observational studies of factors affecting disease progression.
Dr. Katz and others at the Forbes Norris Center work with researchers at the University of California, San Diego, to study mutations in RNA binding proteins that cause neuronal dysfunction and death. Dr. Katz and colleagues at CPMC (California Pacific Medical Center in San Francisco) will collaborate with Cedars-Sinai Regenerative Medicine Institute on new stem cell and gene therapy techniques to treat ALS patients. He is President of the ALS Research Group—an international ALS research collaboration. He sits on the medical advisory board for the Myasthenia Gravis Association.
When I was in CMPC hospital for nine weeks, several doctors said Dr, Katz has patients coming from all over the country for MG treatment. He took me from critical to remission in 10 months. He was going to enter me in a clinical trial he was part of, but I showed good improvement. Not that I’m saying to contact him, although you could, but I’m suggesting you seek someone with similar listed specialties in a University or large teaching hospital in your area.
My PCP told me to always seek doctors affiliated with a major teaching hospital or a university hospital as they are vetted for acceptance and know about current clinical trials you could possibly be entered in.
Also, Google is our friend. Google Myasthenia Gravis specialists in (your City) or go to https://myasthenia.org for Physician Referral List – Myasthenia Gravis Foundation.
Bob