Myasthenia Gravis News Community Forums Healthcare and Treatments Myasthenia Gravis Diagnosis Timeline Reply To: Myasthenia Gravis Diagnosis Timeline

  • MG Community Member

    Member
    November 10, 2021 at 4:33 pm

    First symptoms (difficulty bringing food to the back of my mouth) in Nov 18.  This persisted during December and I also started to slur speech (not great when you’re the narrator of a work panto – afterwards I couldn’t speak at all).  Got fobbed off initially by my GP on first visit.  Went back in January and got a referral to a maxo-fallacial specialist as the GP thought it was mechanical.  That consulation and scan found nothing, so that specialist referred me to a neurologist who had an MG patient.  When he described MG I was pretty certain that’s what it was and blood test and electrical conduction study in Mar 2019 confirmed things.  Given that I was a late onset female, I thought that was pretty speedy.  Chest CT revealed a whopper thymoma so surgery in Apr 19, revealed cancer, radiotherapy that summer and then a crisis with a month long hospital stay in September followed by 3 plasma exchanges and a second surgery and 18 months of steroids, I’m now “down” to just mycophenolate and a bit of pyridostigmine.