• MG Community Member

    Member
    September 4, 2021 at 5:09 am

    It is hard to know if one can go back outside and play again.   Restrictions were losing up finally with the “PLAGUE from CHINA” but now the DELTA VARIANT  is closing places again.    On my way home after giving up 9 vials of fasting blood yesterday (three requests to SONORA LABS by three doctors), I was starving and stopped at WHATABURGER  … their dining room doors were locked up (drive thru only)  … so went to McDONALDS.   Their dining room was roped off .. so I ordered inside but had to take my food home to eat.    They were open after my last doctor’s appointment before … but now they were closed again.  So I am worried about how many gyms and sports locations are closed again.

    I am coming out past my comfort zone, and willing to drive further now that my eyes, fingers, and calf muscles are in MG REMISSION.  But will anything be open?   When I had time  “pre MG”, I was biking, scuba diving, figure skating, horseback riding, doing tennis, and swimming.  But suddenly having un-diagnosed MYASTHENIA GRAVIS for 8 months,  and spending 5 months of 2020 in five different hospitals, my eyes and all my other body parts died every three or so hours.

    But I am in remission now (since 11-27-2020)… and want to carefully get out more and try my land legs.  I had to spend 4 long months in the first three hospitals (as they could not get me an MG diagnosis) … and they would not let me out of bed FOR THREE MONTHS.  So I had to learn to stand in therapy and walk again from the start.  Your arms do not remember to sway back and forth  … when you have been in hospital wrist restraints for the first three months … so you would not try to sleep on your side again or have horrid nightmares …..   and tear out all the IVs and feeding tubes and air hoses.

    I was wanting to get back home and get in my swimming pool and soak and limber my legs again  … and swim exercise.   BUT I was in the hospital from February thru June 2020  …. and during that time …. almost all of my 25,000 gallons of Arizona pool water evaporated away  …. and I just don’t have the legs yet to whip it back in shape and get all the palm fronds out of my naked pool.   But you guys have encouraged me to try something else or try to find a pool that is not closing down after LABOR DAY.   THANKS…