My bitter and best friend myasthenia gravis (MG) takes up a lot of space in my life: in my relationships, my daily routine, and my career choice. I’ve also realized that it’s completely transformed my appearance, as well. Can you believe this disease can affect our sense of style…
My Bitter & Best Friend: MG - a Column by Sarah Bendiff
The first thing I did when I started college was to search for clubs and associations where I could volunteer. Back then, I believed that even if I wasn’t wealthy, I had my health and time to share. Volunteering was my way of contributing to the world, of proving to…
We all like to observe others in subways, buses, or streets, and when I do it, I find myself asking, “What are they thinking about? How is their life going? Do they have the same problems as me, or are theirs worse?” I’m confident that many of you think of…
Last year, I woke up to terrible news: One of my colleagues had passed away. Although I didn’t know her personally, I knew she’d lived with a chronic illness and was an advocate for those with her condition. Her death was sudden and unpredictable, and I felt numb and choked.
If you’ve read my diagnosis story, you know it took me a decade to find out I have myasthenia gravis (MG). But why? Didn’t I see professionals? I did. Weren’t they familiar with MG? They were. Were my symptoms unclear? Absolutely, or this journey wouldn’t have been so…
Even though my symptoms started early, I couldn’t make a strategic plan for higher education because I wasn’t diagnosed with myasthenia gravis (MG) until my second year of college. I’d chosen my dream career: physics. You might think of Stephen Hawking as the perfect example of a disabled person…
Ahead of every family reunion, plan, and event, I fear saying the famous “I’m tired, I can’t” — not because of how it might affect me, but because of how others might react. Normally, I’d be “selfish” and preserve my energy, but in these moments, I feel like I’m in…
It’s been five years since I was diagnosed with myasthenia gravis (MG), an autoimmune neuromuscular disease. MG makes me feel tired and short of breath, and sometimes I struggle to speak clearly. It feels like yesterday when I was diagnosed, and I believe I still need to know more…
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