[Bob]

Yes i was on Soliris for about 2 years but wasnt getting the results like i needed.  I switched to vyvagrat about 7 weeks ago.  I really havent seen any changes but havent had any bad things either.  My case worker said that some times it takes the second round to see results.  63% first round 83% second.  I have a retired icu nurse for a wife and both sons are Bio tech reps so i am being closly monitored.  You can take the second round in 50 days from the first 4 weeks starting from first week so really about 30 days from first day.  If it works that will be great or stays the same better than infusions every 2 weeks.

I tested positive for Covid Friday had bad night that night but doing better now.  I had all 4 shots plus anything else my wife and sons thought i should take😀.   Sometimes having all these medical people isnt that great.  They all want me to let them know before i get to bad so we can go to the hospital.  I told them its like getting the breath knocked out of you if it ever happens you dont want it again this was my case with Mg when i first got it.  One main thing a lot of doctors arent up on the medicans that effect mg so you had better be pro active
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[Bob]

I have taken Solis for 2 .5 years and it hasn’t seemed to help.  It’s better for me than IVIG which I have had alone and with Solis.  At best it’s kept me stable.   I started taking Cellcept along with all the other drugs it’s seemed to do a little.   I like most of you wish for a cure or something that will get me back to normal, but I don’t think it’s going to happen. I am fortunate that I have good insurance and wife’s a ICU/CCU Rn and both sons are in bio medicine.  They all watch me and read constantly about what will help.  It could always be worse.  As a guy once told me at least we’re above the dirt