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I have had myasthenia gravis for close to 2 1/2 years I’ve been on Solaris for like two years it’s helped but it doesn’t seem to be curing anything I’m also on prednisone methadone and several more but I’m looking forward to the new drug also. I have two sons and two daughters both my sons are in the biotech industry and they have researched the drug and they seem to like it quite a bit the test and the trial seem very good I sure hope it works I have tested positive for all the antibodies.   I believe I had this for about two years maybe more before it finally got so bad I realized I had something That wasn’t right I had a sleepy eye, couldn’t walk without a limp, arms got where I couldn’t raise them. Then I got double vision I drove to bossier City from Mississippi to see my sons and got glasses ($750.).  Then got where I couldn’t breathe one night and my wife took me to the er. I coded because of Dehydration I was put in the hospital and they thought I had a stroke but they couldn’t do an MRI because I couldn’t lay down and breathe the neurologist here soon if I want they will put me to sleep I would’ve not walk up the hospitalist told my son and my wife that I did not what know what I had and I need to move it if they could as I said before both my sons work in about tech industry here in Bossier and I knew all the good doctors and they got me on some of the best and within four hours of getting here they knew what I had. Had to sell everything for almost nothing and move here for the Dr care but all my children are here both daughters and both Sons and my granddaughters Live with us so it’s not so bad.  I just wish I could get strong again so I could do something I’m used to working on stuff retired instrument/electrician, And my wife’s a retired nurse ICU cardiac care we planned on a lot of things but God had another plan.  We all wonder why we’re still here but he has shown me that I am not in control and he has a better plan