[Larry Slack]

I know exactly how you feel. I was diagnosed with MG 7 years ago and it was discovered through bloodwork after ER visit. My only symptom has been fatigue; however, Neuro started the typical MG treatments. Mestinon gave me diarrhea, prednisone brought about insomnia, weight gain, and diabetes level blood levels. IVIG caused vein issues and back to ER. Cellcept did nothing. Then on to infusions of Rituximab which was expensive and no help. I have stopped all MG suggested treatments for almost a year, and other than fatigue, which I’ve learned how to manage, I’m going okay. I may develop more severe symptoms in the future, but I’m tired of hearing “Everyone responds differently. . . Let’s try this as some of other patients have seen positive results. . . There’s many new treatments on the market now . . . Not sure if insurance will pay . . . Etc”. I’m reallocating my medical copays to vacation and normal life things, and afternoon nap is my solution to fatigue.

[Larry Slack]

Thanks for positive feedback about Rituximab.  Had first infusion on 12/7 and second will be 12/21.  Haven’t experienced any improvement yet with my fatigue, but I’m hopeful.

[Larry Slack]

Excellent, so glad you found relief with Rituximab.  I had my first infusion Dec 7 and second one will be Dec 21.  I’m hoping for less fatigue.