Lise
Forum Replies Created
-
What about swimming in your pool
? We have a heated pool
But indont know what to to do! We just opened it and the heat of the outside air is already killing me! -
Before I was dialing gott fillers and some Botox. I would never do it now because if they hit a nerve or a muscle it could ruin my face. Also the NP that is to inject me refuses to do it in case of hurting me. She did say fillers aren’t so dangerous
-
I’ve notice I’ve started gaining I’m on 20mg a day
-
This is my treatment plan as of now mestinon 6o mg 3 timer a day I take cellcept 2000 mg a day prednisone 20 mg a day and also go for IVIG treatment on a somewhat frequent basis as of yet 5 day infusion treatments I’ve had 2 since October. Just been given new medication for migraines as the IVIG brings on migraines again hoping it’s not the MG.  Magnesium and potassium is very low also something new?  The medication does help my eye it is almost normal again but it has hit my muscles and nerves in my face at time and weakness in my muscles,  hopefully this last treatment 4days ago will have some progress in slowing things down