Ken Reisenwweber
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I had been on Soliris for about a year when I tried moving to Ultomiris. Had an adverse reaction to the Ultomiris and switched back without issue. There seems to be a lot to try the new options when you have something working even if not 100 percent
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I have periodically experienced the fatigue through the day. Sometimes it just is. Sometimes it is exasperated by heat. I’m on Soliris and mestinon.
Remember this is a snowflake disease and no 2 cases are the same. I’ve found also no 2 days are the same -
Jesus
Diaconate
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My MG has severely reduced my capacity to minister and teach. And to travel 5 hours to see my grandchildren. Yet I am at peace, and focus on what I can do and not what I cannot.
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I have been on Soliris since September 2021. The initial benefit was fair to good. In May I experienced a major boost in energy and stamina. I am out walking almost every morning. That seemed impossible just a month before. I had also joined Noom, and have lost over 40 pounds. The every two weeks has not been a problem for me. I know from the people at church that prayer has been a major component of my recovery as well.