[John Gore]

Hi Amy,
I too am on 90mg x 4. I was having sleep problems so started the XR, after a couple days started getting sick so stopped taking,  immediately felt better once the XR was out of my system. No problems with the 90mg.  Hope it works for you.

John

[John Gore]

<p style=”text-align: left;”>Major victory for me was to finally see a new neurologist that was recommended by my MG support group leaders.  I must say that after my first appointment I’m very impressed and so glad I made the change!</p>

[John Gore]

Richard, search for grants that covers the copay cost for pyridostigmine.  I know the 180mg is real high even with great insurance.

[John Gore]

After both vaccines and booster still got Covid. Very mild case just some coughing and diarrhea (yuck!).  Whole family had it before me so no way to avoid exposure.

 

[John Gore]

Decrease in energy and the uncertainty of  when it occurs.

[John Gore]

Charles is right on! Prism glasses for me worked immediately. Wasn’t until I had a firm diagnose of OMG and a few days on pyridostigmine was I able to see good without the glasses.

[John Gore]

Took 8 visits to doctors over 3 months before I got the confirmed diagnosis of MG.  Symptoms from the start were double vision and trouble focusing.

 

[John Gore]

Just like some of you, my doc said I should get the booster. I did and initially no problems. Then a few days latter started to cough a little.

Family got tested for Covid so decided to join and get tested myself.  My test was positive! So after full vaccine (Moderna) and booster I still got it. Luckily my case was very mild and actually felt good for most of the isolation period. All is good now except for the MG problems now and then.  Rest of family ok.

[John Gore]

I use it, 200 mg for neuropathy at bedtime. Only Med that helps calm the pain and burning. Doc approved but no more than the 200mg.  Have ocular MG, maybe that’s the reason it was approved to take.

[John Gore]

In the last few months I’ve noticed that just a few sips of beer or wine makes my breathing labored.  Breathing returning to normal after about 15 minutes.  Currently have just ocular MG taking pyridostigmine.  Needless to say, no more beer for me!

[John Gore]

Pyridostigmine does cause me watery eyes often, runny nose too. Currently on 3 a day but will need to increase soon as recently having some vision issues between doses.