Greg Josephs
Forum Replies Created
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How about seven?
“WE HAVE MG. WHAT IS YOUR EXCUSE?”
I maintain we are part of an exclusive club, experts in resilience and thinking “outside of the box”.
But now I’ve gotta nap. -
I’ve had MG for almost 20 years but I ran into this quote by Pablo Picasso that keeps me going: “The Meaning of life is to find your gift and the purpose is to give it away”.
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After nineteen years of this silent disease, I’ve adopted a cane to eliminate balance problems. EUREKA! My advice is to get one and see how the world reacts.
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Thank God I have no regrets. I was diagnosed in 2002 and even though I have plenty of limits directly linked to MG but have gradually learned to accept it. Oh and plenty of therapists!
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After being diagnosed in 2002, I was on 2400 mg of Cellcept daily for 18 years (good Lord, that’s 50,000 pills!) but I switched to Soliris 2/2021 until 12/2022, then greeted the New Year with Ultomiris!
I had my third dose last week. No real change.
Now it took Soliris 6 months to have a positive effect.
