George Kesterson
Forum Replies Created
-
I agree that is a great answer, in the mean time I wish they would find some way to self administer something at home.
-
George Kesterson
MemberApril 26, 2023 at 8:26 pm in reply to: Myasthenia Gravis’ Impact on Marriage/RelationshipsI have been diagnosed about 10 years. My spouse has psoriatic arthritis and in now struggling also. She still almost of the house hold chores. I have now recovered enough to start taking care of the outside again. She has been wonderful in supporting me through the 4 years before and the 10 since I was diagnosed. Wonderful partner, spouse and friend
-
I was on 60 mg and put on about 75 pounds over 3 yrs. Now off of Prednisone completely now for about 3 more years and have managed to only lose 30 pounds. Hope you do well. Got of when I was put on Solaris.
-
George Kesterson
MemberAugust 19, 2022 at 2:03 pm in reply to: Describe Your Journey With MG in 3 WordsSurprise, hang on
-
I have had three all Pfizer, with little to no reaction.
I haven’t suspended my Immuran, should I?
I am debating the 4th shot, however if I do decide to get it, I think I will get the Evusheld.
-
I take one at bed time and 1 one in the morning. Have been doing so for 5+ years.
-
George Kesterson
MemberMay 19, 2022 at 3:35 pm in reply to: What Forms of Validation and Support Do Your Loved Ones With MG Respond Best To?I have great understanding from the family and they let me do the house chores that I can do. When I was first diagnosed the family, with help of some articles i collected for the interned on systems of the @#%$@$%#^ mg told me to let them know if I felt that I couldn’t do a task and they would take care of it anytime.
However my church family either forgets or ignores my Mg the treat me the same as if I were normal. with two exceptions the pastor and one of the deacons. I think they took the time to educate themselves, so how do you educate them if their not “interested” I don’t know.
My conclusion in my personal case is: I they care enough for me, they will search the available data and educate themselves.
Sorry for the down side of my situation but that is how I feel with my experiences since I have had Mg