Forum Replies Created

  • George Kesterson

    Member
    May 3, 2023 at 3:04 pm in reply to: What money can buy?

    I agree that is a great answer, in the mean time I wish they would find some way to self administer something at home.

  • I have been diagnosed about 10 years.  My spouse has psoriatic arthritis and in now struggling also.  She still almost of the house hold chores.  I have now recovered enough to start taking care of the outside again.  She has been wonderful in supporting me through the 4 years before and the 10 since I was diagnosed.  Wonderful partner, spouse and friend

  • George Kesterson

    Member
    January 31, 2023 at 2:27 am in reply to: Managing Prednisone Weight Gain

    I was on 60 mg and put on about 75 pounds over 3 yrs. Now off of Prednisone completely now for about 3 more years and have managed to only lose 30 pounds.  Hope you do well.  Got of when I was put on Solaris.

  • George Kesterson

    Member
    August 19, 2022 at 2:03 pm in reply to: Describe Your Journey With MG in 3 Words

    Surprise, hang on

  • George Kesterson

    Member
    April 16, 2022 at 3:36 pm in reply to: 4th shot?

    I have had three all Pfizer, with little to no reaction.

    I haven’t suspended my Immuran, should I?

    I am debating the 4th shot, however if I do decide to get it, I think I will get the Evusheld.

  • George Kesterson

    Member
    March 27, 2024 at 8:51 pm in reply to: droopy eye and weak voice.

    I take one at bed time and 1 one in the morning. Have been doing so for 5+ years.

  • I have great understanding from the family and they let me do the house chores that I can do.  When I was first diagnosed the family, with help of some articles i collected for the interned on systems of the @#%$@$%#^  mg told me to let them know if I felt that I couldn’t do a task and they would take care of it anytime.

    However my church family either forgets or ignores my Mg the treat me the same as if I were normal.  with two exceptions the pastor and one of the deacons.  I think they took the time to educate themselves, so how do you educate them if their not “interested” I don’t know.

    My conclusion in my personal case is: I they care enough for me, they will search the available data and educate themselves.

    Sorry for the down side of my situation but that is how I feel with my experiences since I have had Mg