Myasthenia Gravis News Forums Forums Caregivers, Family, and Partners What Forms of Validation and Support Do Your Loved Ones With MG Respond Best To?

  • rich-michaud

    Member
    May 18, 2022 at 8:01 pm

    My family and friends treat me like there is nothing wrong. They expect me to do all the house work, yard work, etc. I am the only one here working for a living of the rest. I am 74, my wife is 76, two daughters, 57 and 58. Same at work. I tell them about my myasthenia but they have no interest even in what that is.

    • george-kesterson

      Member
      May 19, 2022 at 3:35 pm

      I have great understanding from the family and they let me do the house chores that I can do.  When I was first diagnosed the family, with help of some articles i collected for the interned on systems of the @#%$@$%#^  mg told me to let them know if I felt that I couldn’t do a task and they would take care of it anytime.

      However my church family either forgets or ignores my Mg the treat me the same as if I were normal.  with two exceptions the pastor and one of the deacons.  I think they took the time to educate themselves, so how do you educate them if their not “interested” I don’t know.

      My conclusion in my personal case is: I they care enough for me, they will search the available data and educate themselves.

      Sorry for the down side of my situation but that is how I feel with my experiences since I have had Mg

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