Forum Replies Created

  • Jaimie

    Member
    April 13, 2022 at 10:09 pm in reply to: Reaction to Myasthenia Gravis Diagnosis

    We all thought it was my Thyroid causing all of the problems. My eye doctor did the cold pack. Then sent me to have a blood test. Yep it came back positive. I have Myasthenia Gravis. So I call the Neurologist. The could see me in 6 weeks. I screamed into the phone “I won’t make it that long”.   What do you know I got an appointment the next day.

    Now I am a lot calmer knowing what I have. It has been only a month since diagnosis. I have fallen, couldn’t get out of my bed, can not wash my hair and can not throw darts anymore.

    I am alive still.

    Jaimie

  • Jaimie

    Member
    April 16, 2022 at 7:30 pm in reply to: Pain and Myasthenia Gravis

    Lisa,

    Yes I do have that kind of pain.  Most day when people ask “How  bad is the pain?”. I say, “only thing that doesn’t hurt is my hair.”