[Yasamin]

I had three shots of Astrazeneca vaccin  and each time I had severe side effects. In fact working as a dentist I was obliged to receive the vaccines.

now my neurologist insists  that I get my 4th booster shot and I am wondering how it would be affecting me.

[Yasamin]

To be honest I am very afraid.
I am in a point of my life that I would love to start a relationship. But by being recently diagnosed with MG, I don’t know how it would be possible!

I am not responding to anyone’s requests because I don’t know how to tell them about my condition.
Even if I  explain it, I don’t believe anyone would accept it. I don’t want to make a mistake by making a wrong decision although I need someone close by my side.
I would appreciate it if anyone has the same experience and would be willing to share it with me.

Regards.

Yasamin.

[Yasamin]

Hello everyone.What changes are you expecting to notice  from your medications?!  Are the changes obvious?  I have used mestinon for 2 months Immediately after I was diagnosed but I Went through a crisis of lumbar pain and discomfort and  cramps in both legs so my doctor stopped mestinon and started prednisone. Right now  I am dealing with prednisone side effects But I really can’t tell if it is  effective or not because I  am in the active phase of MG   And can’t tell apart the  real symptoms from the drug side effects.

[Yasamin]

It is one one the craziest moment right now. Sitting in a cafe and reading your massage  and I am dealing with lots of emotions, worries, anxieties and the sense of restlessness. Reading about how I can deal with my daughter is challenging and emotional involving.    Steal couldn’t get used to the idea that how fast   I can  shift from one mood to another.
Thank you for your support.🙏

 

[Yasamin]

For someone who doesn’t have any relationship, starting a new one is quite stressful.

[Yasamin]

I havn’ told my 12 year old daughter yet. She knows It’s been awhile that I am not feeling well but doesn’t know the details. As you can imagine. she keeps forgetting it  because I am trying to perform as before. And I am wondering  if this is a right thing to do or not??!!??!!

[Yasamin]

Hello everyone.

my name is Yasamin. I am 46 years old and have been recently diagnosed by MG.

I have been struggling with variety of symptoms from last summer. I think I owe the diagnostic to the accident and the neck injuries that I had couple of years ago. it started  with extreme weakness of my hands . I had some similar symptoms back then due to neck injuries which I was recommended by my neurologist and neurosurgeon  to keep eye on them and avoid surgery. So when I faced the signs and symptoms again, the first thing I did was to take an MRI and consult my neurologist.

After I described everything and  making a comparison between the  MRI results, surprisingly  he said there is something else  which is not related to the neck problem.

the guesses were between  MG, Myopathy and Guillain-barré and immediately  referred  me for further investigations.

this happened exactly the same time I had to move to France from my country so I had to start the diagnosis here allover again.

Three  months ago the diagnosis  was finalized and I started Mestinon, which I had to stop  because  the side effects were more than the effects and it was replaced by prednizone 60 mg per day.

Besides the physiologic  aspects, I am still very much in shocked mentally . it is a  life changing matter and I’m not sure how and when I am going to accept it.

I am happy that I found this community online. I will follow  the forums and try to stay focused and positive.

thank you.

 

 

[Yasamin]

how wonderful is that your voice is coming  back. if this is not courage then what is?