Forum Replies Created

  • William E Freeman

    Member
    August 5, 2022 at 8:03 pm in reply to: Describe Your Journey With MG in 3 Words

    My words have already been stated, accept I might include stubbornness – meaning not accepting completely the limitations imposed upon me. I try and do as much as I can, as often as I can and not allow MG to totally ruin my quality of life. This may mean rest periods, pain periods, but I want to remain independent for as long as I can.  I force myself to be active, even if only for short periods of time and my activity may be reduced or limited.  I refuse to allow MG to beat me.

  • William E Freeman

    Member
    August 5, 2022 at 7:48 pm in reply to: Neck Weakness and Pain

    Greetings, and I have had MG for around 5 years, and never really thought the somewhat minor, but constant and annoying, neck pain as a result of MG , but rather anthesis. I have had a tilted head for a long time, even prior to my MG diagnoses, but never really thought much about it.  My physicians have never asked me about my neck pain or about my tilted head, so hearing others having that issue is extremely interesting. What I am discovering is that although my physicians all are associated with one of the major medical institutions in the country for my condition, they still seem to not be able to connect all the dotes. Thank you all for enlightening me on this condition.

  • William E Freeman

    Member
    August 5, 2022 at 7:52 pm in reply to: Describe Your Journey With MG in 3 Words

    Could not describe it any better