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  • Steveb4262002

    Member
    March 27, 2024 at 8:53 pm in reply to: Medication exacerbating symptoms

    Diagnosed Oct 2023 w gMG. Couldn’t chew swallow talk or hold my head up. Couldn’t expand my diaphram muscle hench shortness of breath. After plasmapheresis almost 5 months ago & Thymoma/Thymectomy 1 month ago, my only symptoms are shortness of breath & a small amount of leg weakness. I’ve had no problem with prednisone, mestinon, insulin, or any meds I’ve taken. Starting Soliris soon. I ve terrible tree pollen (Juniper) allergies & am even taking the antihistamine Claritin with no affect on gMG.

  • Steveb4262002

    Member
    November 17, 2023 at 4:40 am in reply to: Your Myasthenia gravis symptom that responds least to treatment

    I’m 76, diagnosed 1 month ago. Swallowing is the scariest, eating only baby food. Then, neck weakness so I cannot hold up my head while standing or walking. On 60 mg pyridostigmine 5x / day. Finally get to see my Neurologist after waiting one month after the referral. Pretty much just sit on couch & watch TV all day.

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