[Pat]

Before my first MG crisis June 2022 I very much enjoyed drinking. Typically bourbon and rarely to excess. I was diagnosed in 2013 with very mild symptoms, just drooping eye and a bit of vertigo. Prescribed mestinon and immediately went into remission. Same symptoms same results in 2019. Since the crisis I have stopped drinking with the exception on the very rare taste of a family member’s cocktail or wine. I have been tempted only rarely to try gingerly climbing back onto the wagon but the unknown risk factors are just too frightening. I will gladly forego drinking alcohol to avoid any more hospitalizations.

[Pat]

Lisa I was diagnosed with very mild MG symptoms in 2013 prescribed mestinon and my symptoms went away almost immediately to the point that I no longer needed to take that medication. Same mild symptoms recurred in 2019 with the same results. May of this year my symptoms I started to experience speech and swallowing problems that I had never experienced. These rapidly became more severe leading to my first crisis. I have used the term remission with all three neurologist I have seen and none of them have balked at that term.

[Pat]

The only silver lining with my MG that it didn’t give me any serious symptoms until I was just medicare eligible so I don’t know if that has made my provider situation less complicated. When hospitalized with my first crisis May 2022 the hospital neurologist referred me to the top provider in my area. Unfortunately he was booked through 2023 so I went with the provider in his group that was available hoping my case might be fascinating enough to eventually draw his attention. That hasn’t happened YET but the provider in the group who was admittedly not an MG expert passed me off to the number two expert. That’s where I am now. From what I have researched Christopher D. Lee is one of the top MG doctors in the Vanderbilt Heath System. I would see if he is available or if he is with a group see if there is a provider in that group that will see you.