Norm
Forum Replies Created
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Dysphagia. I started having trouble swallowing in 2014, but diplopia, ptosis, and an MG diagnosis did not occur until 2019. Has this happened to anyone else?
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I think the most important thing is to be seen by a neurologist who has worked with many MG patients. Everyone’s symptomatology is unique, which an MG-experienced neurologist will appreciate.
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The reported lack of response to the vaccine in immunosurpressed people made me anxious to get my third Moderna shot, which I did 4 months after my second shot. Just minimal side effects.
I still wear a face mask and “social distance” in public. It seems that even three vaccinations won’t necessarily trigger a robust immune response to COVID-19. Is there a test?
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We have 7 adorable cats, whom we love like children (possibly more than children — less complicated). My wife does the feeding (all gourmet). And I clean the 8 litter boxes: 3 after my first cup of coffee, 2 after my second cup, and 3 after dinner. Dividing that chore, and others, up makes them easier. (Usually 2 or more boxes are unused.)
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I feel much better in the cooler weather. I run the air-conditioner even when the temperatures outside are moderate.
At night I sometimes have difficulty swallowing. I keep a glass of ice and water next to my bed. The cold water/ice temporarily eliminates the difficulty. Does anyone else have that problem, and that solution?
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I’ve been taking 150 mg/day of azathioprine for over two years. I also take prednisone and pyridostigmine.
I have diarrhea every morning. I don’t know if the cause is the azathioprine, one of the other drugs, or my IBS. Or a combination.
My arms also bruise very easily. The skin tears easily.
I would like to know if anyone else has a similar symptoms and if they can link it to azathioprine.
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I’ve been on various dosages of prednisone for over two years. Lately, I’ve gained 20 pounds, and my arms bruise very easily — just by rubbing against something.
If I start tapering off of prednisone, how will I know I have gone too far? Will there be some non-crisis signs (such as ptosis or diplopia), or do I risk a crisis with no warning? What has been your experience with tapering?
(I’m also taking azathioprine and pyridostigmine.)
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Do any of you have difficulty getting prescriptions for opioid pain medicines? I recently developed shingles (to go with my MG). When I ask for strong medicine, the medical profession in general treats me like an addict-wanna-be.
To avoid prescribing opioids, one doctor had me taking gabapentin, which, according to some reports, is dangerous for MGers.
Over decades, researchers have developed effective pain drugs. Now there is an hysteria about using them!
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Thanks for the information, Charles. I’m going to try to get an antigen test to see if my 3rd shot had a similar effect.