Forum Replies Created

  • Lionel Roosemont

    Member
    July 8, 2022 at 3:59 pm in reply to: Hearing loss in Myasthenia gravis
  • Lionel Roosemont

    Member
    December 29, 2021 at 3:48 pm in reply to: Was Your Pandemic Anxiety Heightened More This Year?

    My wife, our special needs daughter and myself (Generalised MG with bulbar problems) were all three people at risk. So we started staying almost completely inside, one week before the first lockdowns started. I had seen this coming since the beginning of January 2020. 1 month before the hoarding of toilet paper started , I had stocked rations to stay indoors for 3 months. We finally stayed inside for almost 1,5 year. In July this year we carefully came out again during 3-4 months.

    As most of you will probably know that with immunosuppression, the vaccines are not very efficient. My immunity one month after the 3rd shot (October) was at a level lower than most people have it after their first shot. So I am now again confided since 6 weeks, as hospitals are increasingly overwhelmed and it looks like this is going to continue for the next weeks.

    At the same time I am now quite hopeful that the new South-African version might bring relief. It’s not as dangerous as Chinese version, but the numbers are quite high. I’m confident (but could of course err), that the pandemic being at its worst might be over soon.

    One more thing. I’m quite convinced it’s not a question of ‘if’, but ‘when’ we will become infected. But I think that postponing that date as much as possible, will bring more medication and protection against it. It might well end up being a severe cold – which of course would be bad enough for us MG-ers.

  • Lionel Roosemont

    Member
    December 30, 2021 at 5:13 pm in reply to: Was Your Pandemic Anxiety Heightened More This Year?

    I can only agree with you Alan. I’m doing the same as you do. I wish you much strength.

  • Lionel Roosemont

    Member
    December 30, 2021 at 5:10 pm in reply to: Was Your Pandemic Anxiety Heightened More This Year?

    sorry, I tried to copy/paste the text from word, but cannot edit the text anymore to delete the unnecessary coding that appeared after the paste.

  • Lionel Roosemont

    Member
    December 30, 2021 at 5:01 pm in reply to: Was Your Pandemic Anxiety Heightened More This Year?

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    Thank you Chris for your reply.🙂

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    You<span lang=”EN-US”>r stress of keeping a good balance in these days is so important! As, sadly, quite a few people in their distress and anxiety tend to lose that out of sight.</span>

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    <span lang=”EN-US”>Indeed :</span>

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    – Learn to live with the circumstances <span lang=”EN-US”>in mainstream society </span>is <span lang=”EN-US”>a healthy </span>ba<span lang=”EN-US”>sic attitude.</span>

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    <span lang=”EN-US”>- We have sooner or later all been frustrated by one or more regulations today, trying to balance the basic importance of freedom against the desire not to damage society.</span>

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    <span lang=”EN-US”>- Particularly your ‘putting joy over fear’ is also so important. Particularly in isolation.</span>

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    <span lang=”EN-US”>- The sacrifices needing to be made by isolating oneself over missing opportunities is certainly not an easy one: neither to go through, nor to have to decide about when they (‘isolating moments’ and ‘using opportunities’) are part of the right middle road.</span>

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    <span lang=”EN-US”> </span>

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    <span lang=”EN-US”>As someone once said:</span>

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    <span lang=”EN-US”>‘finding the</span> serenity to accept the things I cannot change<span lang=”EN-US”>,</span>

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    <span lang=”EN-US”>Having the </span>courage to change the things I c<span lang=”EN-US”>an.</span>

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    <span lang=”EN-US”>And getting the wisdom to know </span>the difference<span lang=”EN-US”> between the two.</span>

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    <span lang=”EN-US”> </span>

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    <span lang=”EN-US”>Great principles, indeed, Chris. Thank you again. </span><span lang=”EN-US”>👌</span>

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