Forum Replies Created

  • Lilli

    Member
    July 26, 2022 at 2:35 pm in reply to: Pain and Myasthenia Gravis

    Hi Jodi
    Im on verapamil for arrhythmias, Coumadin for Factor v Leiden a genetically inherited clotting disorder and Pulmicort for asthma also Prevacid for GERD.
    I keep hearing about Mestinon causing muscle cramps i thought about the chest muscle but the pain is very specific. Can it cause the heart to spasm? Or could it have been esophageal spasms? When you have a doctor who says if its the medicine then i don’t know its not only scary but you feel abandoned.
    Its hard to have a life off the meds.
    Thank you for your interest.

  • Lilli

    Member
    July 25, 2022 at 12:59 pm in reply to: Pain and Myasthenia Gravis

    I’ve asked this question in a different place on this site so as a newbie please forgive my redundancy if u all have seen this question before. When taking mestinon i noticed right knee pain and left sided chest pain. I went to the ER thinking i was having a heart attack they assured me i was not. When i stop the medication the chest pain goes away. Unfortunately when i stop my MG symptoms come back. Anyone ever experience anything like this my neurologist said if it is the mestinon then he doesnt know what to do….yikes!!!

  • Lilli

    Member
    July 28, 2022 at 4:14 pm in reply to: Pain and Myasthenia Gravis

    Yes i read all the folks who suffer with the pain MG/medication can cause my heart goes out to them. For me the Chest pain was quite concerning. I guess i just want to make sure its not my heart and if this medication is affecting my heart…. what then?

  • Lilli

    Member
    July 28, 2022 at 4:08 pm in reply to: Pain and Myasthenia Gravis

    I get it all day it does seem to worsen during mid day. It can be quit painful but mostly annoying. I think i have the wrong doctor. I need someone who will address my concern.
    Thank you very much.